NHS Autism Assessment

Autism spectrum disorder (ASD) is a developmental condition that affects communication, behavior, and social interaction in varying degrees. The process of getting an autism assessment through the National Health Service (NHS) can be a crucial step for many individuals and families seeking answers and support.

Understanding the Need for Assessment

The journey towards an autism assessment often begins when an individual, or those close to them, notice signs that may indicate ASD. These signs can include difficulties with social communication, challenges in forming and maintaining relationships, and a preference for routine and predictability. Recognizing these signs is the first step towards seeking professional advice.

Initial Steps

The NHS recommends that anyone who suspects they or their child might have autism should seek advice from a GP or another health professional. It’s helpful to come prepared with a list of observed signs of autism and any other relevant information. This can include input from friends, family, or teachers who have noticed potential signs of ASD.

The Referral for an Autism Assessment

After discussing concerns with a healthcare professional, the next step is usually a referral for a formal autism assessment. This assessment is conducted by a team of specialists and is the only way to determine if an individual is on the autism spectrum.

What to Expect During the Assessment

An autism assessment involves a series of evaluations by a team of experts. For children, this may include observations of how they play and interact, discussions about their development, and possibly a visit to their educational setting. For adults, the process may involve filling out questionnaires and interviews about personal history and current challenges.

The Outcome of the Assessment

At the end of the assessment, a detailed report is provided, outlining the findings and stating whether the individual meets the criteria for an autism spectrum diagnosis. This report also highlights areas where support might be needed and the individual’s strengths.

The Importance of a Diagnosis

An autism diagnosis can be a valuable tool for understanding and explaining one’s experiences. It can also open doors to tailored support at school, work, or in daily life. For parents, a diagnosis can provide insights into a child’s needs and access to resources to support their development.

Challenges and Support

It’s important to note that accessing an autism assessment can sometimes be difficult, with long waiting times being a common issue. Persistence and exploring all available options, such as seeking a second opinion or connecting with support groups, can be essential during this process.

The NHS provides a structured pathway for autism assessments, offering a means to understand and address the unique needs of individuals with ASD. While the journey can be complex, the outcome can provide a foundation for support and personal growth.

For more detailed information on the NHS autism assessment process, you can visit the official NHS website or consult the National Autistic Society services directory for additional support options.

This blog post aims to provide an overview of the NHS autism assessment process. It is not a substitute for professional medical advice. Always consult a healthcare professional for personal health concerns.

are private autism assessment recognised by NHS

Navigating the Recognition of Private Autism Assessments by the NHS

When it comes to the recognition of private autism assessments by the National Health Service (NHS), parents and caregivers often find themselves navigating a complex landscape. The question of whether these assessments are acknowledged by the NHS is not just a matter of policy, but also of the quality and adherence to established guidelines.

The National Autistic Society suggests that while there is a common belief that private assessments may not be recognized by the NHS, this is somewhat of an urban myth. Private assessments can indeed be recognized, provided they meet certain criteria and standards. For instance, the assessment should follow the guidance on the diagnosis of autism as outlined by the National Institute for Health and Care Excellence (NICE).

The Autism Service, a provider of diagnostic autism assessments, asserts that a high-quality assessment that aligns with NICE guidelines should be recognized by health and education authorities. They emphasize that as registered healthcare professionals, their assessments are conducted with the same standards of care and professional conduct expected in the NHS. This is crucial for the assessment to be considered credible and for it to potentially contribute to an Education, Health and Care Plan (EHCP) for a child.

It’s important to note that the recognition of a private assessment does not automatically guarantee support or services from public bodies. The impact of autism on the individual and the specific needs that arise from it are what primarily determine the provision of assistance. A detailed and insightful report from a private assessor, highlighting the individual’s challenges and needs, can serve as a strong foundation for requesting support.

For parents considering a private assessment, it’s advisable to seek clarity from their local authority on its acceptance as evidence for an EHCP. In cases where information provided contradicts the recognition of private assessments, families have the right to raise a complaint.

In summary, while private autism assessments can be recognized by the NHS, the key lies in ensuring that these assessments are thorough, follow the proper guidelines, and are conducted by qualified professionals. This ensures that the diagnosis serves as a reliable stepping stone towards obtaining the necessary support and services for individuals with autism.

For further information on the recognition of private autism assessments by the NHS, the National Autistic Society’s Autism Helpline offers additional advice and can be reached at 0808 800 4104. Additionally, The Autism Service provides insights into the process and standards of their assessments, which may be helpful for those considering this route.

autism assessment for adults NHS

Navigating the Path to an Autism Assessment for Adults in the NHS

Autism, a condition that affects communication and behavior, is often thought of as a childhood issue. However, it’s not exclusive to children; adults can be on the spectrum too. Recognizing the signs of autism in adulthood can be the key to unlocking support and understanding one’s own experiences. The National Health Service (NHS) in the UK provides a structured pathway for adults seeking an autism assessment.

The first step towards an autism assessment is to have a conversation with a healthcare professional, typically a General Practitioner (GP). It’s advisable to prepare for this meeting by noting down any signs of autism you’ve observed in yourself. This could include difficulties with social interaction, sensory sensitivities, or specific patterns of behavior and thought. Friends, family, or colleagues who have noticed these signs can provide additional insights.

During the assessment, a team of specialists will evaluate the individual’s history and behavior. This process may involve discussions with people close to the individual and observations of their interactions. The goal is to gain a comprehensive understanding of the person’s experiences and challenges.

A diagnosis of autism can be life-changing. It can provide a framework for understanding past difficulties and strategies for managing daily life. For adults, a diagnosis can facilitate access to support at work or in educational settings and may open up avenues for financial assistance.

However, obtaining an autism assessment as an adult can be challenging. Waiting times can be lengthy, and the process may seem daunting. Persistence is key, and it’s important to remember that a second opinion is an option if you encounter obstacles. Support groups and communities, both online and offline, can offer guidance and solidarity throughout this journey.

For those who suspect they might be on the autism spectrum, the NHS provides a clear route to diagnosis and support. While the path may not always be straightforward, the benefits of understanding and embracing one’s autistic identity can be profound. For more detailed information on the signs of autism in adults and how to pursue an assessment, the NHS website offers comprehensive resources.

Understanding oneself is a fundamental human need, and for adults with autism, an official assessment is a significant step towards self-awareness and self-acceptance. The NHS stands as a beacon of support, guiding individuals through the complexities of autism diagnosis and beyond.

private autism assessment accepted by NHS

Navigating the Path to Autism Assessment: Private and NHS Perspectives

Autism spectrum disorder (ASD) is a developmental condition that affects communication, behavior, and social interaction in varying degrees. Early diagnosis and intervention can significantly benefit individuals with autism, providing them with the necessary support and resources to thrive. However, the journey to obtaining an autism assessment can be complex, especially when considering the options between private assessments and those provided by the National Health Service (NHS) in the UK.

Private Autism Assessments: An Overview

Private autism assessments are conducted outside the NHS framework by qualified professionals who specialize in diagnosing ASD. These assessments are often sought by individuals or families who wish to bypass the lengthy waiting times associated with NHS services. A private assessment typically involves a detailed evaluation of the individual’s developmental history, behavior, and social interactions, often utilizing standardized diagnostic tools recognized internationally.

The Acceptance of Private Assessments by the NHS

A common concern among those considering a private autism assessment is whether it will be recognized by the NHS and other public bodies. The good news is that a high-quality private assessment, adhering to the guidelines set by the National Institute for Health and Care Excellence (NICE), is generally accepted by health and educational authorities. This acceptance is crucial for individuals seeking support services, educational accommodations, or an Education, Health and Care Plan (EHCP).

The Criteria for Recognition

For a private autism assessment to be recognized, it must meet certain criteria:

The assessment should be conducted by a healthcare professional registered in the UK.
The diagnostic process should follow NICE guidelines for ASD diagnosis.
The assessment should employ ‘gold standard’ diagnostic tools and provide a comprehensive report detailing the individual’s needs.

It’s important to note that while the diagnosis itself is usually accepted, the level of post-diagnostic support provided by public services may vary based on the individual’s specific needs and local policies.

The Role of the NHS in Autism Assessments

The NHS provides comprehensive autism assessments through a referral process, typically initiated by a General Practitioner (GP) or another healthcare professional. The NHS assessment team may include a range of specialists who will evaluate the individual’s behavior, development, and interactions. The process is designed to be thorough and multidisciplinary, ensuring a holistic understanding of the individual’s condition.

Collaboration Between Private and NHS Services

In some cases, individuals may opt for a private assessment and then seek support from NHS services. Effective communication and collaboration between private assessors and NHS teams are essential in these scenarios. Sharing the assessment report with the individual’s GP and the NHS team can facilitate a seamless transition and continuity of care.

For those navigating the path to an autism assessment, understanding the interplay between private and NHS services is vital. A private assessment that meets the required standards can be a valid and expedient route to diagnosis, which is often recognized by public services for the purpose of accessing support. However, it’s advisable to consult with healthcare professionals and local authorities to ensure that the chosen path aligns with the individual’s needs and circumstances.

For more information on autism assessments and the recognition of private diagnoses, individuals can consult resources provided by the National Autistic Society and the NHS, or seek advice from healthcare professionals experienced in ASD diagnosis and care.

private autism assessment recognised by NHS

Navigating the Path to Autism Assessment: Private and NHS Perspectives

Understanding the NHS Process

The NHS offers autism assessments at no direct cost to the individual, but the path to a diagnosis can be lengthy due to high demand and limited resources. The process typically involves a referral from a GP or another healthcare professional to a team of autism specialists who conduct a comprehensive evaluation.

Considering a Private Assessment

For those seeking a quicker route, private autism assessments are an alternative. These assessments are conducted by qualified professionals and can lead to a diagnosis much faster than the NHS pathway. However, one of the main concerns for individuals considering this option is whether the diagnosis will be recognized by the NHS and other public bodies.

Recognition of Private Assessments

The good news is that a high-quality private autism assessment should be recognized by health and education authorities. This recognition means that the diagnosis can be used to access support services, educational accommodations, and potential financial benefits. It’s important to ensure that the private assessment is thorough and conducted by a reputable professional to facilitate this recognition.

After the Diagnosis

Whether through the NHS or a private provider, receiving an autism diagnosis is just the beginning. It opens the door to tailored support and interventions. For children, this might include an educational needs assessment and specialized support at school. For adults, it could mean workplace accommodations and access to community services.

The Importance of Quality Assessment

Regardless of the route chosen, the quality of the autism assessment is paramount. A detailed and accurate assessment will provide a strong foundation for requesting help and support. It should articulate the individual’s specific needs and challenges associated with their autism, serving as a critical tool for advocacy and resource allocation.

Deciding between an NHS or private autism assessment is a personal choice that depends on various factors, including urgency, financial considerations, and individual preferences. Both pathways can lead to a recognized diagnosis, but it’s essential to ensure that the assessment is conducted by qualified and experienced professionals. With a proper diagnosis, individuals with autism and their families can better understand their needs and access the support necessary for a fulfilling life.

For more information on autism assessments and support, the National Autistic Society provides resources and guidance that can be invaluable during this process.

This blog post aims to provide a general overview and does not constitute medical advice. For personalized guidance, please consult with a healthcare professional or the National Autistic Society’s Autism Helpline.

Autism Assessment in the UK

Navigating the Path to Autism Assessment in the UK

Autism spectrum disorder (ASD) is a developmental condition that affects communication, behavior, and social interaction in varying degrees. Recognizing the signs of autism early can lead to a better understanding of an individual’s needs and the provision of appropriate support. In the United Kingdom, the process of obtaining an autism assessment for adults or children involves several steps, each crucial for ensuring a comprehensive evaluation.

The Importance of a Diagnostic Assessment

A diagnostic assessment is a critical step in identifying autism in individuals. It provides a detailed analysis by a team of medical professionals who are experienced in autism spectrum disorders. The National Autistic Society offers extensive guidance on what to expect during the diagnostic process, providing support at a time that can be stressful for individuals and families.

How to Begin the Assessment Process

The journey to an autism diagnosis starts with a conversation. If you suspect that you or your child may be displaying signs of autism, the first step is to seek advice from a healthcare professional. This could be a general practitioner (GP), a health visitor for children under five, or any other health professional you or your child regularly see. The NHS outlines the process of getting an autism assessment, emphasizing the importance of being prepared for the appointment and providing tips for the discussion with healthcare providers.

What Happens During an Autism Assessment?

An autism assessment is conducted by a team of specialists who will observe interactions, ask about any challenges being faced, and speak to people who know the individual well. This comprehensive approach ensures that all aspects of the individual’s behavior and interactions are considered. The NHS provides a detailed explanation of what to expect during an autism assessment, including the steps involved and how to challenge the results if necessary.

The Benefits of a Diagnosis

Obtaining a diagnosis of autism can be a relief for many, as it helps in understanding the individual’s needs and how to support them effectively. For parents, it can provide insights into how to assist their child at school and access support services. Adults may find that a diagnosis helps in explaining their experiences to others and in obtaining support in educational or workplace settings.

Challenges and Support

It’s important to acknowledge that accessing an autism assessment can be challenging, with long waiting times often being a barrier. Persistence is key, and seeking a second opinion or connecting with others who have gone through similar experiences can be beneficial.

Autism assessments in the UK are a vital part of understanding and supporting individuals with ASD. By following the outlined steps and utilizing the resources available, individuals and families can navigate the assessment process with greater confidence and clarity. For more information and guidance, the National Autistic Society and the NHS offer comprehensive advice and support for those seeking a diagnosis.

For those looking to learn more about autism assessments in the UK or seeking support, visiting the National Autistic Society’s website and the NHS’s dedicated pages on autism can provide valuable information and guidance. Remember, you are not alone in this journey, and there are resources available to help you through the process.

self referral for autism assessment NHS

Navigating the Path to an Autism Assessment through the NHS

Autism, a condition that affects communication and behavior, is a spectrum, meaning it impacts individuals differently. Recognizing the signs of autism early can lead to a better understanding of oneself or one’s child, paving the way for tailored support and interventions. In the UK, the National Health Service (NHS) provides a structured pathway for autism assessments, which is crucial for an official diagnosis.

The first step in seeking an autism assessment through the NHS is to have a conversation with a healthcare professional who can guide you through the process. This could be your General Practitioner (GP), a health visitor, or any other health professional you or your child regularly see. It’s important to come prepared for this discussion with observations and examples of behaviors that align with autism symptoms.

During the assessment, a team of specialists will evaluate the individual’s communication, social interactions, and behaviors. They may also seek input from people who know the individual well, such as family members, friends, or teachers. The assessment’s outcome will be a comprehensive report that confirms whether an autism diagnosis applies.

An autism diagnosis can be incredibly beneficial. For children, it can assist parents in understanding their child’s needs, securing appropriate support at school, and accessing financial benefits. For adults, a diagnosis can aid in explaining to others why certain aspects of daily life may be more challenging, as well as securing support in higher education or the workplace.

However, it’s important to note that accessing an autism assessment can sometimes be challenging, with potential long waiting times. If you encounter difficulties, don’t hesitate to seek a second opinion or reach out to support groups for advice and shared experiences.

Understanding autism and navigating the assessment process can be complex, but the NHS provides a clear route to diagnosis and support. By taking the first step and discussing your concerns with a healthcare professional, you can begin the journey toward a better understanding and the necessary support for yourself or your child.

how long is the waiting list for autism assessment NHS

The NHS and Autism Assessment Waiting Times

The National Health Service (NHS) in England has been facing a significant challenge in meeting the demand for autism assessments. The latest statistics from NHS Digital and the National Autistic Society paint a concerning picture of the current waiting times for individuals seeking an autism assessment.

As of December 2023, there were 172,022 individuals on the waiting list for an autism assessment in England. This represents a staggering 47% increase in the number of people waiting compared to the previous year. The National Institute for Health and Care Excellence (NICE) guidelines recommend that no one should wait longer than three months between being referred and being seen for an assessment. However, the reality is that the vast majority, approximately 83%, have been waiting longer than the recommended 13 weeks.

The impact of these delays cannot be understated. An autism diagnosis is crucial for individuals to access the appropriate support and services. Without it, many face challenges in education, employment, and daily life, potentially leading to mental health issues such as anxiety or depression. The National Autistic Society has called on the government to urgently address this growing crisis by investing in diagnostic services to reduce waiting times and prevent individuals from reaching a point of crisis.

The NHS has committed to making progress in reducing diagnosis waiting times as part of its National Autism Strategy for England. However, the current statistics indicate that immediate action is necessary to address the backlog and provide timely assessments for those in need.

The situation is a complex one, exacerbated by the pandemic and varying by region, creating a ‘postcode lottery’ for autism assessment services. The government’s investment in diagnosis services, as outlined in the national autism strategy, is a step in the right direction, but it is clear that more resources are needed to meet the growing demand and ensure that all individuals receive the support they need in a timely manner.

For those currently navigating the waiting list for an autism assessment, it is important to seek support from local services, charities, and support groups. While the wait can be challenging, there are resources available to provide guidance and assistance during this period.

The NHS and the government must continue to work together to find solutions that will improve the autism assessment pathway, ensuring that individuals and their families do not face unnecessary delays in receiving a diagnosis and the subsequent support that can make a significant difference in their lives.

For more detailed information on the current state of autism assessment waiting times, you can refer to the publications by NHS Digital and the National Autistic Society.

autism assessment in London

Navigating Autism Assessment in London: A Comprehensive Guide

Autism Spectrum Disorder (ASD) is a developmental condition that affects communication, behavior, and social interaction in varying degrees. Recognizing the importance of early and accurate diagnosis, London offers a range of services for autism assessment, catering to children, adolescents, and adults. This guide aims to provide an overview of the options available for those seeking an autism assessment in London.

The London Autism Diagnostic Clinic (TLADC)

TLADC stands out as a private service that adheres to the National Institute for Health and Care Excellence (NICE) guidelines, ensuring a gold standard in their assessment process. They employ a multidisciplinary team approach, involving Clinical Psychologists and Speech and Language Therapists, to tailor the diagnostic experience to each individual’s needs.

Autism Assessment Clinic

With a claim of over 150 cases assessed, the Autism Assessment Clinic boasts a large network of mental health professionals ready to provide specialized and accurate ASD diagnoses. They emphasize the importance of understanding the unique characteristics of ASD, such as sensory sensitivities and special interests, which are crucial in forming a comprehensive understanding of each individual.

Autism Clinic London

For those seeking a consultant-led service, Autism Clinic London provides diagnostic assessments for children between the ages of 2 and 12 years. Their service includes both virtual and face-to-face options, accommodating the diverse needs of families and individuals.

The journey to obtaining an autism assessment can be complex, but London’s dedicated clinics and services strive to make the process as smooth and informative as possible. By offering a range of specialized services, these clinics contribute to a better understanding and support for individuals with ASD and their families.

For more detailed information on each clinic’s services, assessment process, and how to initiate contact, please refer to the respective websites provided in the references.

Navigating the NHS for an Autism Assessment with Dr. Moafi

Autism Spectrum Disorder (ASD) assessments are a critical step for many individuals and families seeking answers and support. In the UK, the National Health Service (NHS) provides a pathway for these assessments, ensuring that they are accessible and thorough. For those considering an assessment with Dr. Moafi, a renowned expert in the field, here’s a comprehensive guide to understanding the process within the NHS framework.

Understanding the Need for an Assessment

An autism assessment is a detailed evaluation that helps to determine whether an individual meets the criteria for ASD. This assessment is crucial as it can lead to a formal diagnosis, which is the gateway to tailored support and services. It involves a multi-disciplinary team approach and may include interviews, observations, and standardized testing.

The Role of Dr. Moafi in Autism Assessments

Dr. Moafi is a highly experienced psychologist who specializes in the assessment and treatment of ASD. With extensive training in various diagnostic tools and a deep understanding of the developmental challenges associated with ASD, Dr. Moafi offers a comprehensive assessment process. His expertise is not only in diagnosing ASD but also in providing insights into the associated conditions and recommending appropriate interventions.

The NHS Pathway for Autism Assessment

The NHS provides a structured pathway for autism assessments, which typically begins with a referral from a GP or another healthcare professional. Once referred, individuals may undergo a preliminary screening to determine the need for a full assessment. If a full assessment is deemed necessary, the individual will be directed to specialists like Dr. Moafi, who are equipped to conduct a thorough evaluation.

Preparing for the Assessment

Preparation for an autism assessment involves gathering relevant information about the individual’s developmental history, behavior, and any previous evaluations or interventions. This information helps the assessing team to build a comprehensive picture of the individual’s needs.

The Assessment Process

During the assessment, Dr. Moafi and his team will engage with the individual through various methods to evaluate communication, social interaction, and behavior patterns. Tools such as the ADOS-2 and ADI-R may be used to support the assessment. The process is sensitive to the individual’s comfort and is designed to minimize stress.

After the Assessment

Following the assessment, Dr. Moafi provides a detailed report outlining the findings and any diagnosis made. This report is essential for accessing support services and can guide future interventions. The NHS ensures that post-diagnosis support is available, including educational resources and access to therapies.

An autism assessment is a significant step, and the NHS, with experts like Dr. Moafi, strives to make this process as smooth and supportive as possible. For those seeking an assessment, it’s important to engage with healthcare professionals and to understand the pathway laid out by the NHS. With the right support, individuals with ASD can lead fulfilling lives.

Exploring Autism Assessment in London: The Expertise of Dr. Moafi

Autism Spectrum Disorder (ASD) is a complex developmental condition that involves persistent challenges in social interaction, speech and nonverbal communication, and restricted/repetitive behaviors. The effects of ASD and the severity of symptoms are different in each individual. This is where the expertise of professionals like Dr. Moafi becomes invaluable.

Dr. Moafi, a seasoned expert in autism assessment, has been a beacon of hope for many families navigating the complexities of ASD. With a robust background in psychology and years of experience, Dr. Moafi has dedicated his career to understanding autism and providing comprehensive assessments that pave the way for tailored support and interventions.

Working within the National Health Service (NHS) in London, Dr. Moafi has been instrumental in offering assessments that are not only thorough but also empathetic. His approach is grounded in the latest research and best practices, ensuring that each assessment is conducted with the utmost care and professionalism.

The process of autism assessment with Dr. Moafi involves a detailed evaluation of the individual’s behavior, communication abilities, and interaction patterns. This often includes interviews with the individual and their family, observations in various settings, and the use of standardized diagnostic tools. Dr. Moafi’s assessments are designed to capture the unique profile of each individual, recognizing the diversity of ASD and the need for personalized care.

For those seeking an autism assessment in London, Dr. Moafi’s clinic offers a gateway to understanding and support. The clinic’s team of mental health professionals is equipped to handle a wide range of cases, from children to adults, ensuring that each person receives the attention and expertise they deserve.

The significance of Dr. Moafi’s work cannot be overstated. An accurate diagnosis is the first step in understanding ASD and can lead to better outcomes for individuals and their families. It opens up avenues for specialized education plans, behavioral therapies, and community support that can significantly improve the quality of life for those with ASD.

Dr. Moafi’s commitment to his field is evident in the positive impact he has had on the lives of many. His work not only enhances the understanding of autism but also fosters a more inclusive society where individuals with ASD can thrive.

Navigating Autism Treatment Options in London

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental condition that affects communication, behavior, and social interaction in varying degrees. London, a city known for its comprehensive healthcare system, offers a multitude of options for autism treatment and support, catering to the diverse needs of individuals with ASD and their families.

Understanding Autism Spectrum Disorder

Before delving into treatment options, it’s crucial to understand that ASD is a spectrum condition, meaning it manifests differently in each person. Some individuals may require significant support in their daily lives, while others may live independently and have remarkable skills in specific areas. Recognizing this diversity is key to finding the right treatment approach.

Diagnostic Services in London

The journey often begins with a thorough assessment and diagnosis, which can be obtained through various specialized clinics in London. The Autism Clinic London, for instance, provides a Consultant-Led Autism Spectrum Disorder service offering both virtual and face-to-face diagnostic assessments for children aged 2 to 12 years. Similarly, The London Autism Diagnostic Clinic offers comprehensive assessments for children, adolescents, and adults, adhering to the National Institute for Health and Care Excellence (NICE) guidelines.

Treatment and Support Services

Post-diagnosis, London offers a range of treatment and support services tailored to individual needs. Cognitive Behavioral Therapy (CBT), specialized coaching, and medication are some of the treatment options available. The London Autism Service, for example, promotes advocacy for autistic people and provides assessment, advice, and a multi-therapy approach.

Educational and Therapeutic Interventions

Educational and therapeutic interventions play a significant role in the treatment of ASD. Structured teaching, speech and language therapy, and occupational therapy are commonly employed strategies. These interventions aim to enhance communication skills, social interaction, and academic performance, thereby improving the quality of life for individuals with ASD.

Support for Families

Supporting the families of individuals with ASD is equally important. Many services offer advice, workshops, and support groups to help families navigate the challenges and celebrate the strengths associated with autism. This holistic approach not only benefits the individual with ASD but also empowers the family as a whole.

London’s approach to autism treatment is multifaceted, emphasizing personalized care and support. With a focus on strengths and a commitment to improving life outcomes, the services available in the city reflect an understanding and respect for neurodiversity. For those seeking autism treatment in London, the resources are abundant, and the support is unwavering.

Navigating Autism Diagnosis in London: A Comprehensive Guide

Autism spectrum disorder (ASD) is a developmental condition that affects communication, behavior, and social interaction in varying degrees. The journey to obtaining an autism diagnosis can be complex and emotional for individuals and families. In London, there are several pathways and services available to those seeking a diagnosis, each offering support and guidance tailored to the unique needs of autistic individuals.

The London Autism Diagnostic Clinic (TLADC) is one such service that provides a comprehensive assessment and consultation for children, adolescents, and adults. Following the National Institute for Health and Care Excellence (NICE) guidelines, TLADC ensures a gold standard service through a multidisciplinary approach involving Clinical Psychologists and Speech and Language Therapists.

Another notable service is the London Autism Service, which emphasizes the advocacy for autistic people and views neurodiversity as a difference, not a deficit. They offer diagnostic assessments and advice for children and adults, utilizing tools like the Autism Diagnostic Observation Schedule 2 (ADOS-2) and the Autism Diagnostic Interview – Revised (ADi-R), both considered gold standards in autism assessment.

For adults seeking a diagnosis, Harley Therapy provides confidential autism diagnosis and support in various London locations, including Harley Street, London Bridge, and the City, as well as online counselling. Their approach is discreet and professional, catering to the unique challenges faced by adults on the autism spectrum.

The process of obtaining an autism diagnosis in London typically involves several stages, starting with a referral from a GP or another healthcare professional. Following this, an initial assessment is conducted to determine the need for a full diagnostic evaluation. If pursued, a detailed assessment is carried out by a team of specialists, which may include observations, interviews, and standardized diagnostic tools.

Post-diagnosis, these services often provide support and advice tailored to the individual’s needs. This can include therapeutic interventions, clinical and educational advice, and assistance with Education, Health, and Care Plans. The goal is to ensure that individuals and families receive the understanding and support necessary to navigate life with autism.

It’s important to note that the journey doesn’t end with a diagnosis. Autism is a lifelong condition, and ongoing support, education, and advocacy are crucial for the well-being and development of autistic individuals. Services in London are dedicated to providing this continued support, helping to foster a society that celebrates neurodiversity and provides opportunities for all.

For those in London seeking an autism diagnosis, it’s essential to research and reach out to these specialized services. With the right support and understanding, the path to diagnosis can lead to a greater comprehension of oneself or one’s child, paving the way for a more supportive and accommodating environment.

Navigating Autism: A Comprehensive Guide to Assessment, Treatment, and Diagnosis in London

Autism Spectrum Disorder (ASD) is a complex developmental condition that involves persistent challenges in social interaction, speech and nonverbal communication, and restricted/repetitive behaviors. The effects of ASD and the needs of those affected vary across the spectrum. In London, a city known for its medical expertise and inclusive healthcare approaches, numerous clinics and professionals specialize in the assessment, treatment, and diagnosis of autism, providing hope and support to individuals and families navigating this journey.

One such beacon of excellence is the Autism Clinic London, a consultant-led service offering ASD diagnostic assessments and post-diagnostic support by highly qualified expert doctors and multidisciplinary professionals. They cater to children between the ages of 2 and 12 years, offering private assessments and partnering with NHS trusts to help reduce patient waiting times. Their comprehensive approach includes an initial video consultation, observation and interactive sessions, physical examinations, and a detailed diagnostic interview with feedback.

Another prominent institution is The London Autism Diagnostic Clinic (TLADC), which provides a comprehensive assessment and consultation service to children, adolescents, and adults. TLADC follows guidance set out by the National Institute for Health and Care Excellence (NICE) to provide a recognized gold standard service, using a multidisciplinary approach facilitated by experienced clinical psychologists and speech and language therapists.

The London Autism Assessment Practice (LAAP) also offers a comprehensive diagnostic assessment and advice service for children and young people, with or without autism, tailoring their services to meet the unique needs of each individual.

For those seeking a more bespoke assessment, the Marylebone Autism Psychology Practice (MAPP) provides evidence-based, gold-standard measures to understand the specific presentation and needs of individuals with autism, alongside person-centered psychological support.

The role of professionals like Dr. Moafi in this field cannot be overstated. Experts like Dr. Moafi bring a wealth of knowledge, experience, and compassion to the table, guiding families through the often overwhelming process of diagnosis and treatment. They are instrumental in developing personalized care plans that address the wide-ranging needs of individuals with autism, ensuring that each person can reach their full potential.

In conclusion, London’s commitment to understanding and supporting individuals with autism is evident in the quality and variety of services available. From initial assessments to ongoing treatment and support, the city’s healthcare providers work tirelessly to create an environment where individuals on the spectrum can thrive. For those embarking on this journey, know that you are not alone, and London’s medical community is equipped to guide you every step of the way.

Navigating the Path to Private Autism Assessment in London

Autism Spectrum Disorder (ASD) is a developmental condition that affects communication, social interaction, and behavior. Recognizing the signs of autism early can lead to better outcomes for individuals, which is why many seek a formal assessment and diagnosis. In London, there are several private clinics and services that offer comprehensive autism assessments, catering to both children and adults.

One of the key services available in London is provided by HCA UK, which offers a detailed ASD assessment service. This service includes a semi-structured assessment of communication, social interaction, and play using the Autism Diagnostic Observation Schedule (ADOS) test. The process involves a multidisciplinary team, including consultant neurodevelopmental pediatricians, psychologists, speech and language therapists, and physiotherapists.

The London Autism Diagnostic Clinic (TLADC) is another notable service that provides a comprehensive assessment and consultation service following the National Institute for Health and Care Excellence (NICE) guidelines. Their approach is client-centered, ensuring that the diagnosis of Autism contributes towards understanding and support for the individual.

For adults seeking an assessment, Harley Therapy™ offers confidential autism diagnosis and support in various locations, including Harley Street, London Bridge, and the City, or worldwide via online counseling.

The Autism Service is another resource that simplifies finding the nearest clinic for autism or ADHD assessment. They provide a search tool to filter by assessment type and facilitate booking requests online.

Lastly, The Blue Tree Clinic offers private autism assessments in London, with a team of specialists ready to help individuals understand their diagnosis and learn strategies to navigate the challenges they face.

These services underscore the importance of accessible and supportive pathways for those seeking a private autism assessment in London. With the right diagnosis and support, individuals with ASD can lead fulfilling lives, and these private services play a crucial role in facilitating that journey.

Navigating the Path to Autism Assessment for Children in the NHS

Autism spectrum disorder (ASD) is a developmental condition that affects communication, behavior, and social interaction. Early assessment and diagnosis are crucial for children with ASD to receive the support and interventions they need to thrive. In the United Kingdom, the National Health Service (NHS) provides guidelines and services for autism assessment for children, ensuring that families have access to necessary resources.

The first step in obtaining an autism assessment through the NHS is to speak with a healthcare professional who knows the child well. This could be a general practitioner (GP), a health visitor for children under five, or another health professional such as a therapist or special educational needs coordinator (SENCO) at the child’s school. These professionals can provide advice and refer the child for a formal autism assessment conducted by specialists.

During the assessment, a team of autism specialists will evaluate the child through various methods. They may observe the child’s interactions, ask about developmental history, and consult with individuals who are familiar with the child, such as family members, teachers, or other healthcare providers. The assessment aims to understand the child’s needs comprehensively and determine if they meet the criteria for an autism diagnosis.

Parents and caregivers play a vital role in the assessment process. They can prepare by noting signs of autism they have observed, gathering input from others who know the child, and bringing relevant information to the assessment appointments. It’s also important for parents to be involved in discussions about the child’s strengths and challenges, as this information can help shape the support plan.

The NHS recognizes that waiting times for autism assessments can be lengthy, and it encourages families to seek support while waiting for an appointment. This support can include speech and language therapy referrals, local support groups, and educational resources. Additionally, the NHS provides operational guidance to improve autism assessment pathways, aiming to deliver better outcomes for individuals with ASD and their families.

Receiving an autism diagnosis can be a significant step for children and their families. It can lead to a better understanding of the child’s needs, access to tailored support at school, and eligibility for certain benefits. Moreover, a diagnosis can provide relief and validation for families, confirming that their child’s challenges are recognized and can be addressed with appropriate interventions.

For those navigating the autism assessment process, it’s essential to stay informed, advocate for the child’s needs, and utilize the resources available through the NHS. With the right support, children with ASD can reach their full potential and lead fulfilling lives.

For more detailed information on the autism assessment process and available support, please refer to the NHS’s official guidelines and resources.

Assessing Autism for Adolescents in the NHS

Autism assessment for adolescents within the National Health Service (NHS) is a critical process that ensures young individuals receive the appropriate support and resources they need. The journey to a formal autism diagnosis can be complex, but it is structured to be as thorough and informative as possible.

The first step in the assessment process is to speak with a healthcare professional, such as a General Practitioner (GP) or a special educational needs co-ordinator (SENCO) at the child’s school. They can provide advice and refer the adolescent for an autism assessment conducted by specialists. It’s beneficial to come prepared to these initial discussions with a list of observed signs of autism and input from individuals who know the adolescent well.

During the assessment, a team of specialists will engage in a multi-faceted evaluation, which may include observing the adolescent’s interactions, reviewing their developmental history, and consulting with people close to them. This comprehensive approach ensures a well-rounded understanding of the adolescent’s needs.

The result of the assessment is a detailed report that outlines if the adolescent meets the criteria for an autism spectrum diagnosis and provides recommendations for support in areas such as social interaction and communication. Understanding the adolescent’s strengths is also a key component of the assessment outcome.

It’s important to note that the demand for assessments can lead to long waiting times, and it may not always be straightforward to secure an assessment. Persistence and exploring all available avenues for support are essential during this time. The NHS provides guidance and resources to help navigate the assessment pathway and offers support for those awaiting assessment.

For adolescents and their families, an autism diagnosis can be a gateway to understanding and accessing tailored support. It can facilitate better educational provisions and inform strategies for successful learning and social integration. For adults, it can provide clarity on past experiences and guide adjustments in the workplace or higher education settings.

The NHS is committed to delivering improved outcomes for all individuals on the autism spectrum, and the assessment process is a fundamental part of this commitment. By ensuring a supportive and understanding approach, the NHS aims to empower adolescents with autism to reach their full potential.

For more detailed information on the assessment process and available support, the NHS and organizations like the National Autistic Society provide valuable resources and guidance.

Navigating the Path to an Autism Assessment for Adults in the NHS

Autism, a condition that affects communication and behavior, is often thought of as a childhood issue. However, it’s not exclusive to children; adults can be on the spectrum too. Recognizing this, the National Health Service (NHS) in the UK provides a pathway for adults to receive an autism assessment.

The first step towards an assessment is to speak with a healthcare professional, typically a General Practitioner (GP). It’s important to come prepared to this appointment with a list of behaviors and traits that align with autism. This could include difficulties in social interactions, challenges in adapting to changes in routine, or sensory sensitivities.

During the assessment process, a team of specialists will evaluate the individual through various methods. This may involve questionnaires, interviews with the person and their close contacts, and observations of social interactions. The goal is to understand the individual’s unique profile and how autism may manifest in their life.

For many adults, a formal diagnosis of autism can be life-changing. It can provide a framework for understanding past challenges and guide future support. An autism diagnosis can open doors to tailored support at work or in education and may lead to eligibility for certain financial benefits.

However, the journey to an assessment can be fraught with obstacles, including long waiting times and the challenge of finding a GP who is knowledgeable about adult autism. Persistence is key, and it may be necessary to seek a second opinion or additional support from autism advocacy groups.

The NHS website offers comprehensive guidance on the signs of autism in adults and the assessment process. For those who suspect they may be autistic, this information is a valuable starting point for seeking a diagnosis and the subsequent support that can greatly enhance their quality of life.

Understanding autism in adults is crucial, not just for the individuals directly affected, but for society as a whole. By recognizing and supporting adult autism, we can foster a more inclusive and understanding community.

For more detailed information on the assessment process and how to prepare for it, visit the NHS’s official page on autism assessment. Remember, seeking an assessment is a positive step towards self-understanding and accessing the support you deserve.

How to get an autism assessment

1. Talk to someone for advice

If you think you or your child have signs of autism, the next step is to talk to someone about it.

You could speak to:

a GP
a health visitor (for children under 5)
any other health professional you or your child see, such as another doctor or therapist
special educational needs co-ordinator (SENCO) staff at your child’s school

Ask them about referring you or your child for an autism assessment.

An assessment is done by autism specialists. It’s the only way to find out if you or your child are autistic.

Tips for when you speak to someone

write a list of the signs of autism you think you or your child have and bring it with you
ask people who know you or your child well (like friends, family or teachers) if they have noticed any possible signs you could put on your list
bring a pen and paper so you can take notes
bring your child or someone who knows you well with you, if you think it might help (you do not have to)

Don’t

try not to talk too much about other things – autism should be the main thing you talk about

2. Have an autism assessment

An autism assessment is where a team of autism specialists check if you or your child are autistic.

An assessment team may:

ask about any problems you or your child are having
watch how you or your child interact with other people
speak to people who know you or your child well, such as family, friends, your GP or your child’s teachers

At the end of the assessment, you’ll be given a report saying if you or your child are autistic.

Find out what happens during an autism assessment

How a diagnosis can help

Parents and children

For parents and children, a diagnosis can help you:

understand your child’s needs and how you can help your child
get advice about support for your child at school
get support for parents and carers of autistic people, such as financial benefits
understand that your child is not just being “naughty” or “difficult”

Adults

For adults, a diagnosis can help you:

understand why you might find some things harder than other people
explain to others why you see and feel the world in a different way
get support at college, university or work
get some financial benefits

If you find it hard to get an assessment

It’s not always easy to get an autism assessment. Waiting times can also be very long.

If you’re finding it hard to get an assessment, you could ask to speak to someone else, like another GP – this is called getting a second opinion.

It may also help to speak to other people who have been in a similar situation.

What is autism?

Autistic people may act in a different way to other people

Autistic people may:

find it hard to communicate and interact with other people
find it hard to understand how other people think or feel
find things like bright lights or loud noises overwhelming, stressful or uncomfortable
get anxious or upset about unfamiliar situations and social events
take longer to understand information
do or think the same things over and over

Autism is not an illness

Being autistic does not mean you have an illness or disease. It means your brain works in a different way from other people.

It’s something you’re born with. Signs of autism might be noticed when you’re very young, or not until you’re older.

If you’re autistic, you’re autistic your whole life.

Autism is not a medical condition with treatments or a “cure”. But some people need support to help them with certain things.

Autistic people can live a full life

Being autistic does not have to stop you having a good life.

Like everyone, autistic people have things they’re good at as well as things they struggle with.

Being autistic does not mean you can never make friends, have relationships or get a job. But you might need extra help with these things.

Autism is different for everyone

Autism is a spectrum. This means everybody with autism is different.

Some autistic people need little or no support. Others may need help from a parent or carer every day.

Some people use other names for autism

There are other names for autism used by some people, such as:

autism spectrum disorder (ASD) is the medical name for autism

Asperger’s (or Asperger syndrome) is used by some people to describe autistic people with average or above average intelligence

It’s not clear what causes autism

Nobody knows what causes autism, or if it has a cause.

It can affect people in the same family. So it may sometimes be passed on to a child by their parents.

Autism is:

not caused by bad parenting
not caused by vaccines, such as the MMR vaccine
not linked to diet
not an infection you can spread to other people

Autistic people can have any level of intelligence

Some autistic people have average or above average intelligence.

Some autistic people have a learning disability. This means they may find it hard to look after themselves and need help with daily life.

Autistic people may have other conditions

Autistic people often have other conditions, such as:

attention deficit hyperactivity disorder (ADHD)
dyslexia
anxiety
depression
epilepsy

Signs of autism

Find out what the main signs of autism are and if you should get advice.

Signs of autism in children

Autism in young children

Signs of autism in young children include:
not responding to their name
avoiding eye contact
not smiling when you smile at them
getting very upset if they do not like a certain taste, smell or sound
repetitive movements, such as flapping their hands, flicking their fingers or rocking their body
not talking as much as other children
not doing as much pretend play
repeating the same phrases

Autism in older children

Signs of autism in older children include:

not seeming to understand what others are thinking or feeling
unusual speech, such as repeating phrases and talking ‘at’ others
liking a strict daily routine and getting very upset if it changes
having a very keen interest in certain subjects or activities
getting very upset if you ask them to do something
finding it hard to make friends or preferring to be on their own
taking things very literally – for example, they may not understand phrases like “break a leg”
finding it hard to say how they feel

Autism in girls and boys

Autism can sometimes be different in girls and boys.

Autistic girls may:

hide some signs of autism by copying how other children behave and play
withdraw in situations they find difficult
appear to cope better with social situations
show fewer signs of repetitive behaviours

This means autism can be harder to spot in girls.

Get advice if:

you think your child might be autistic

You could speak to:

a GP
a health visitor (for children under 5)
any other health professional your child sees, such as another doctor or therapist
special educational needs (SENCO) staff at your child’s school

Getting diagnosed can help your child get any extra support they might need.

Signs of autism in adults

Main signs of autism

Common signs of autism in adults include:

finding it hard to understand what others are thinking or feeling
getting very anxious about social situations
finding it hard to make friends or preferring to be on your own
seeming blunt, rude or not interested in others without meaning to
finding it hard to say how you feel
taking things very literally – for example, you may not understand sarcasm or phrases like “break a leg”
having the same routine every day and getting very anxious if it changes

Other signs of autism

You may also have other signs, like:

not understanding social “rules”, such as not talking over people
avoiding eye contact
getting too close to other people, or getting very upset if someone touches or gets too close to you
noticing small details, patterns, smells or sounds that others do not
having a very keen interest in certain subjects or activities
liking to plan things carefully before doing them

Autism in women

Autistic women may be more likely to:

have learned to hide signs of autism to ‘fit in’ – by copying people who do not have autism
be quieter and hide their feelings
appear to cope better with social situations
show fewer signs of repetitive behaviours

This means it can be harder to tell you’re autistic if you’re a woman.

See a GP if:

you think you may be autistic

If you already see a health professional, such as another doctor or therapist, you could speak to them instead.

Getting diagnosed can help you get any extra support you might need.

Getting diagnosed as autistic

Find out how to get diagnosed as autistic and how a diagnosis can be helpful.

What happens during an autism assessment

How to get an autism assessment

You need to be referred for an assessment by someone such as a GP or special educational needs co-ordinator (SENCO) staff at your child’s school.

You may have to wait a few months to get an appointment.

Find out how to get diagnosed

What you can do while you wait for an assessment

If you think you or your child need support at school, home or at work, you can start getting help before having an assessment.

You can:

ask a GP if the assessment team can suggest any support groups
ask a GP to refer your child for speech and language therapy
find a local support group using the National Autistic Society services directory
talk to teachers or special educational needs co-ordinator (SENCO) staff at your child’s school
speak to student support services at college or university
speak to your manager or human resources at work
ask your local council for a needs assessment to see what support they can recommend

What happens during an autism assessment

You or your child may have 1 or more appointments with a team of different professionals.

For children

The assessment team may:

ask you about your child’s development, such as when they started talking
watch how you and your child interact, and how your child plays
read any reports sent by their GP, nursery or school
ask about their medical history and do a physical examination

A member of the team may also visit your child’s school to watch them in class and at break time.

For adults

The assessment team may:

ask you to fill in a questionnaire about yourself and any problems you have
speak to someone who knew you as a child to find out about your childhood
read any reports from the GP about other health problems you may have

Getting the result

When the assessment is finished, you’ll be given a report saying what the team found.

You may be given it by the team or get it in the post.

The report will say:

if you or your child are autistic – it might say something like you “meet the criteria for autism spectrum diagnosis”
what you or your child might need help with – such as social interaction, communication, behaviours or sensitivity to lights, colours and sounds
what you or your child are good at

Sometimes the report can be hard to understand as it can be full of terms used by healthcare professionals.

Ask the assessment team if you need any help.

You and your child should also be offered another appointment a few weeks or months later, to talk to someone from the assessment team about the report.

Autism is a lifelong condition, so the report will be used throughout childhood and into adulthood.

If you do not agree with the result

When you get the report, you may:

be told you or your child are not autistic
be asked to wait until your child is a bit older to be assessed again, as the signs of autism may not be clear
be given a diagnosis you do not agree with, such as a learning disability

Ask the assessment team why they have made the diagnosis they have.

The assessment team might arrange for a second opinion from a different team.

If you still do not agree, you can ask the GP to refer you to another team for a second opinion. Or you can pay for another assessment by a professional you choose who works outside the NHS (privately).

Remember that a second opinion may say the same thing.

Newly diagnosed with autism: things to help

Give yourself time

People react to a diagnosis of autism in different ways.

For some, it’s a relief to find out why they or their child think, feel and act the way they do. For others, it can be a shock.

Try to give yourself time to come to terms with the diagnosis.

Remember:

help and support is available
even if things are hard now, they can get better
you or your child are still the same person as before
autism is not an illness or disease with treatments or a “cure”
autistic people have things they’re good at as well as things they need help with

Find help and support services

You might feel alone when you or your child are first diagnosed.

But there are places you can get support.

You can get help from:

local support groups
national charities
other autistic people or parents on social media and forums
your school, college or workplace
your local council
your GP or the autism assessment team that diagnosed you

Listen to other people’s stories

Some people find it helpful to find out about other people’s stories of autism.

The charity healthtalk.org has stories from autistic people and parents of autistic children

You could also search online for autism blogs, videos or books.

Important

Remember, autism is different for everyone. What happened to other people might not be the same for you or your child.

Look out for other health problems

Autism is not an illness. But many autistic people also have other conditions.

These are not always checked for during an autism assessment.

See a GP if you have any concerns about your or your child’s health. They can help you get any extra care you need.

Autism and everyday life

Find information and advice about living as an autistic person or caring for an autistic child.

How to help your autistic child with day-to-day life

How to help your child communicate

use your child’s name so they know you’re speaking to them
keep language simple and clear
speak slowly and clearly
use simple gestures, eye contact and pictures or symbols to support what you’re saying
allow extra time for your child to understand what you have said
ask your autism assessment team if you can get help from a speech and language therapist (SLT)
try ways to help them communicate, such as Signalong, Makaton or PECS
read tips from the National Autistic Society on communicating with your child

Don’t

try not to ask your child lots of questions
try not to have a conversation in a noisy or crowded place
try not to say things that could have more than 1 meaning, such as “pull your socks up” or “break a leg”

Dealing with anxiety

Anxiety affects a lot of autistic children and adults. It can be caused by not being able to make sense of things going on around them, and feeling misunderstood or unaccepted by people who are not autistic.

Try to find out why your child’s feeling anxious.

It might be because of:

a change in routine – it might help to prepare your child for any change, such as a change of class at school
difficulty identifying, understanding or managing their feelings
a noisy or brightly coloured place – it might help to take your child to a calmer place, such as another room

If your child is often anxious, ask your GP about therapy, such as cognitive behavioural therapy (CBT), which may help.

Helping with your child’s behaviour

Some autistic children have behaviours such as:

stimming – a kind of repetitive behaviour (such as flapping their hands or flicking their fingers)
meltdowns – a complete loss of control caused by being totally overwhelmed

If your child has these behaviours, read our advice about how to help your child’s behaviour.

Eating difficulties

Many children are “fussy eaters”.

Autistic children may:

only want to eat foods of a certain colour or texture
not eat enough or eat too much
eat things which are not food (called pica)
have problems with coughing or choking while eating
be constipated, so they feel full even when they have not eaten much food

It may help to keep a food diary, including what, where and when your child eats. This can help you notice any common issues your child has.

Speak to a GP or your autism team about any problems your child’s having with eating.

Problems sleeping

Many autistic children find it hard to get to sleep, or wake up several times during the night.

This may be because of:

anxiety
sensitivity to the light from smartphones or tablets
problems with the sleep hormone melatonin
issues such as hyperactivity or a health condition that affects sleep

You can help your child by:

keeping a sleep diary of how your child sleeps to help you notice any common issues
following the same bedtime routine
making sure their bedroom is dark and quiet
letting them wear ear plugs if it helps
talking to a GP about how to manage health conditions that make sleep difficult, such as a food sensitivity or breathing problem

If these tips do not help, talk to your autism team about creating a sleep plan to help your child’s sleep behaviour.

If your child’s sleep does not get better, a GP might refer you to a paediatrician or child psychiatrist with experience of autism who can prescribe a medicine called melatonin to help your child sleep.

Staying healthy

It’s important that your child has regular check-ups with the:

dentist
optician
doctors treating any other conditions your child has

Children over 14 who also have a learning disability are entitled to an annual health check.

Do not be afraid to let staff know what they can do to make it easier to go for check-ups.

Friendships and socialising

Some autistic children find it hard to make friends.

There are some things you can do to help:

get ideas from other parents on autism forums and local support groups
ask your child’s school if they can help
ask your autism team how to help your child communicate and socialise
search the National Autism Society directory for local social groups that are autism-friendly
read more advice about making friends from the National Autistic Society

Don’t

do not put pressure on your child – learning social skills takes time
do not force your child into social situations if they’re OK being on their own

How to help with your autistic child’s behaviour

Common types of behaviour in autistic children

Some autistic children may behave in ways that put a lot of strain on you and your family.

Some common autistic behaviours are:

stimming (short for ‘self-stimulating behaviour’), a kind of repetitive behaviour
meltdowns, a complete loss of control over behaviour

You may hear health professionals call some behaviours “challenging”.

Some autistic children can also be physically or verbally aggressive. Their behaviour can be harmful to themselves or other people.

But remember, all autistic children are different and not every day will be challenging or stressful.

Why these behaviours happen

Many autistic children use a set of behaviours to help them manage their emotions and make sense of their environment. Sometimes they’re done for enjoyment.

Some things that can be linked to these behaviours include:

being over- or under-sensitive to things like bright lights, noises, touch or pain
anxiety, especially when routines suddenly change
not being able to make sense of what’s going on around them
being unwell or in pain

These behaviours are not your or your child’s fault.

Stimming

Stimming is a kind of repetitive behaviour.

Common stimming behaviours include:

rocking, jumping, spinning, head-banging
hand-flapping, finger-flicking, flicking rubber bands
repeating words, phrases or sounds
staring at lights or spinning objects

Stimming is usually harmless. It may look odd to others, but you should not try to stop it if it’s not causing any harm to you or your child.

Meltdowns

Meltdowns are a complete loss of control caused by being totally overwhelmed.

If your child has a meltdown, the most important thing is to try to stay calm and keep them safe.

If you’re worried your child might hurt themselves or others, try to hold them to keep them safe.

It’s not always possible to prevent meltdowns, but there are some things you can do that may help at an early stage.

These include:

letting your child wear headphones to listen to calming music
turning down or removing bright lights
distraction techniques, such as fiddle toys
planning ahead for any change in routine, such as a different route to school

It may help to keep a diary for a few weeks to see if you can spot any meltdown triggers that you can do something about.

Speak to the autism care team or a GP if your child is:

stimming all the time or having lots of meltdowns
being bullied at school because of their behaviour
aggressive, harming themselves or harming other people

If you’re struggling to cope, your child may be referred for professional support.

Advice about school if your child is autistic

Choosing a school for your child

One of the main decisions you’ll have to make is the type of school you want your child to go to.

You’ll have to decide if you think your child should go to a:

mainstream school – a regular school where your child may get support from a special educational needs co-ordinator (SENCO) if they need it
special school – a school for children with special educational needs
residential school – where children stay overnight
independent school – also called a section 41 school, which is not funded by the local council, so you might have to pay fees yourself

This can be a hard decision to make and there might not be lots of choice where you live.

Getting support at a mainstream school

If your child can go to a mainstream school or nursery, you can help them get support if you think they need it.

1. Speak to staff at the nursery or school

Speaking to staff at their nursery or school is the best place to start.

You could speak to:

your child’s teacher
the school’s SENCO

Talk to them about your child’s needs. For example, if they need help with communication, learning or social skills.

2. Ask what support your child can get

Ask the teacher or SENCO what support they can provide.

This may be things like:

extra teaching support for your child
different ways of teaching that are better for your child
separate lessons to help your child improve their skills

This may be enough for some autistic children. Other children may need extra support.

3. Get extra support if your child needs it

If your child needs extra support, they’ll need an education, health and care (EHC) plan.

This is a document from your local council. It says what education and health needs your child has and what support they should get.

An EHC plan can either help:

the school apply for extra money so they can support your child
you apply for a place at a school that’s better for your child

Your child does not need to have been diagnosed with autism to get extra support.

How to get extra support

Ask your local council for an EHC assessment of your child’s special education needs and disabilities (SEND). An EHC assessment can also be requested by your child’s school, a health visitor, doctor, or relative.
Have an assessment. The council will speak to you, the school and health professionals to work out what support your child needs.
Read the draft plan. You can comment on the plan and add details, like the type of school you want your child to go to.
Agree on the final plan.

The whole process can take a few months. Ask the school what support they can offer while it’s happening.

If you do not agree with the council’s decision

The council may decide your child does not need an EHC assessment or plan. If this happens, it should tell you why.

If you do not agree with its decision, you have the right to appeal.

You’ll be told how to do this when you hear from the council.

Getting a place at a special school

To get a place at a special school, your child will usually need an EHC plan.

As part of an EHC plan, you have the right to tell your local council what type of school you’d like your child to go to, or name a particular school you prefer.

The council can only refuse this if there’s a clear reason why the school is unsuitable.

Find out more about choosing a school with an EHC plan on the Independent Provider of Special Education Advice (IPSEA) website.

Help for families of autistic people

How autism can affect you and your family

Having an autistic child can put a lot of strain on you and your family.

You might need to spend a lot of time helping your child get the support they need. This can be very stressful and exhausting.

It may be hard to make time for the rest of your family and can affect your relationships with each other.

If you feel you need help, you can get support from lots of places.

Things that can help you and your family

ask friends and family if they can help with day-to-day things or just be there to talk to
get advice from other parents of autistic children or autistic adults – find out where to get support
listen to other parents’ stories – you can search online for blogs, videos and books
ask your local council for a carer’s assessment – you might be able to get extra support and financial benefits
think about doing a course for parents of autistic children – such as the EarlyBird course from the National Autistic Society

Don’t

do not feel guilty for taking time for yourself when you can – even just going for a walk on your own can help give you a break

Talking to your child about autism

It’s your choice when you want to tell your child about their autism.

Some parents do it straight away, while others wait until their child’s a bit older. There’s no right or wrong time.

When you tell your child, it may help to:

do it when they’re feeling calm or relaxed
talk to them in a place where they feel comfortable, with no distractions
explain they do not have an illness, but they might need extra support to help them with some things
explain they might find some things harder than other people, and some things easier
bring them to a support group to meet other autistic children

Supporting your other children

Some children can find it hard if their brother or sister is autistic.

If you have other children, there are things you can do to help them.

make time for them whenever you can – try to do some activities with just them
talk to them about what’s going on and ask if they have any questions or worries
let them have time on their own or with their friends – for example, sleepovers at friends’ houses
check the advice from Sibs, a charity for siblings of disabled children

Don’t

do not be afraid to involve them in things like meetings with health professionals – it can help them understand what’s going on

Changing from child to adult care if your child is autistic

What happens when your child turns 18

Where possible, your child will be asked to be more involved in the decisions about their care.

When your child turns 18:

the NHS will continue to care for their health, but they may see a different doctor or a care team for adults
they may have to pay for some of the care they used to get for free from the council
any support they need to help with their education will need to be provided by their college or university, if they go to one

Information:

If your child has an education, health and care plan (EHCP), this will usually continue until they’re 25, unless they:

do not need support anymore
go to university
get a job

What you can do to help your child

It’s a good idea to start thinking about your child’s future when they’re around 14.

You could:

speak to any doctors or care teams your child has about what happens when they turn 18
apply for a needs assessment from your council – this may help your child get some free care and support when they’re an adult
apply for a carer’s assessment if you care for your child – you may be able to get support and financial benefits
ask colleges or universities what support they can give your child, if they’re planning to go to one

If you find it hard to get support from your council

If your council decides your child does not need the same support when they turn 18, you can complain if you disagree.

Check your local council’s website for information about making a complaint.

You might also want to use an advocate (someone who helps speak up for you).

An advocate can:

help you understand the care process and challenge decisions you disagree with
go to meetings and write letters with you

Advice about medicines and medical appointments if you’re autistic

Useful tips for medicines

If you or your child take medicines, these tips may help.

ask if there are other treatments that might help – medicine might not always be the only option
ask about the possible side effects
tell your doctor if you think the medicine is not working or is causing side effects – some medicines can work differently in autistic people
ask for regular medicine reviews – a review is a check-up to see if the medicine you’re taking is still right for you or your child and is not causing any problems
read advice about problems swallowing pills if this is a problem for you or your child

Don’t

do not stop taking any medicines without speaking to a doctor first – some medicines can cause serious side effects if you stop taking them suddenly

Useful tips for medical appointments

ask for an appointment at the start or end of the day – the waiting room may be less busy and you may have to wait for less time
ask for a double appointment so you’re not rushed
arrange a visit before your appointment – knowing what to expect when you go for your appointment may help you or your child feel less anxious
bring someone else with you on the day if it might help
ask at reception if there’s a quiet place you can wait – if not, ask if you can wait outside or in the car and if someone can call or get you when they’re ready

Don’t

do not worry about letting staff know how they can make things easier – you have the right to ask for simple changes to be made that may help

Treatments that are not recommended for autism

Autism is where your brain develops differently to non-autistic people. It is not an illness and there is no cure.

If you’re autistic, a GP or local autism team may suggest approaches that can help you to:

develop daily living skills
develop communication skills
manage other physical or mental health conditions, such as pain or anxiety
manage harmful behaviours

But there are also treatments and approaches that are not recommended because either:

they’re fake
there’s evidence that they’re harmful
the research and evidence show no benefit to autistic people – or there’s no good research into them

Treatments for autism that are fake or can be harmful

Some products or services, claiming to be cures or treatments for autism, are fake or can be harmful.

Examples of these include:

GcMAF – an unlicensed injection made from blood cells
bleaching – also called chlorine dioxide (CD) or Mineral Miracle Solution (MMS)
CEASE, which discourages vaccinations and recommends potentially dangerous levels of nutritional supplements
chelation – removing heavy metal toxins from the blood
secretin – a hormone found in the body
some vitamins, minerals and dietary supplements
raw camel’s milk

Do not use any of these to treat autism.

How to spot fake treatments

There are some warning signs that may suggest a treatment is fake:

it claims to “cure” or help people “recover from” autism
it claims to cure lots of different conditions
it claims to work in most people and have quick results
personal stories are used to claim it works, rather than medical evidence
words like “miracle”, “faith” and “trust” are used
it can be done by anyone without any training or qualifications
it costs a lot of money
it is not available on the NHS

Other treatments that are not recommended

The National Institute of Health and Care Excellence (NICE) will only recommend something if there is good evidence that it benefits autistic people.

Research into the following approaches has not shown any benefit for autistic people and they are not recommended:

hyperbaric oxygen therapy – treatment with oxygen in a pressurised chamber
neurofeedback for speech and language problems – trying to change brain activity
auditory integration training for speech and language problems – therapy using music
omega-3 fatty acids – for sleep problems
exclusion diets – such as gluten-free or casein-free diets and ketogenic diets
oxytocin – a hormone

If you’re considering a treatment that is not recommended by NICE, speak to a GP or local autism team to discuss the risks.

Other conditions that affect autistic people

Attention deficit hyperactivity disorder (ADHD)

Symptoms of ADHD include:

finding it hard to concentrate and getting distracted easily
acting without thinking
finding it hard to sit still

People with ADHD may need extra support at school or work. Sometimes they need to take medicine.

Find out more about attention deficit hyperactivity disorder (ADHD)

Dyslexia and dyspraxia

Some autistic people have:

problems with reading, writing and spelling (dyslexia)
clumsy movements and problems with organisation and following instructions (developmental co-ordination disorder, or dyspraxia)

Extra support at school can often help.

Problems sleeping (insomnia)

Symptoms of insomnia include:

finding it hard to go to sleep
waking up several times during the night
waking up early and not being able to go back to sleep

Changing your bedtime routine can often help.

Mental health problems

Many autistic people have problems like:

feeling very worried a lot of the time (anxiety)
feeling unhappy, irritable or hopeless (depression)
feeling a need to keep doing certain actions (obsessive compulsive disorder, or OCD)

These conditions can often be treated with talking therapies or medicines.

Learning disabilities

A person with a learning disability may find it hard to:

understand new or complicated information
learn new skills
look after themselves

Epilepsy

Symptoms of epilepsy include:

shaking and collapsing (called a “fit” or seizure)
staring blankly into space
strange smells or tastes
tingling in your arms or legs

Epilepsy can often be treated with medicine.

Find out more about epilepsy

Problems with joints and other parts of the body

Some autistic people may have:

flexible or painful joints
skin that stretches or bruises easily
diarrhoea or constipation that does not go away

These can be caused by conditions like joint hypermobility syndrome or Ehlers-Danlos syndromes.

You may need support from a range of health professionals, including a physiotherapist.

See a GP if:

you’re autistic and think you might have another condition
your child is autistic and you think they might have another condition
you have another condition and think you might be autistic – if you already see a doctor for your other condition, you could speak to them instead

Where to get autism support

Friends and family

Telling people close to you about your or your child’s autism diagnosis can help them understand how to support you.

They may be able to help with:

everyday things so you have more time to focus on yourself or your child
emotional support

Reference: https://www.nhs.uk/

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